|
Post by Bob wall on Sept 14, 2020 20:39:50 GMT
Hello every I been reading this forum since 2015, but never posted, on feb 14 2015, I messed around with a girl I knew for a few months, we didn’t have sex but her vaginal fluid ended on my penis head when she masturbated me with her hands, after the masturbation ended I felt a weird tingling feeling through my body, I thought nothing of it, fast forward to April 2015 I got a really bad cold for a week and then it went away, but in May 2015 I started to get a sore throat and had tonsil stones, the doctor did a test for strep throat and it was positive, they gave me antibiotics to clear the strep and it cleared, but the sore throat never fully went away, I also started to get other symptoms at this time such as spit always stuck in the back of my throat and muscles aches, I had a bubbly rash on my arm that went away after 2 weeks, I started to get a burning pain in the head of my penis, sharp pain in the palms of my hands, I develop dark circles under my eyes, and my face muscles became severely swollen and my jaw joints started to click and pop and the right side of my jaw became dislocated, I became severely depressed starting around 2016 and wouldn’t leave the house, I started eatting to much junk food and became 200 pounds, around this time in 2016 my family in my house also became infected( due to dirty towels i used to masturbate) they also have chronic cough and clearing of mucus from the throat, I was going crazy thinking it was hiv I been tested around maybe 50 times are more for hiv and other stds and have never shown positive, no doctors can figure out the cause of my symptoms, I have been to countless doctors including infectious disease doctors, I even had aperiomics test done on my blood and it shows negative for no infections fast forward to 2020 and I have developed heart disease from the way I was eatting, I still have coughing and mucus in my throat and burning pain in my penis and pain in my hands till this day, my face pain and tmj issues have gotten better with treatment, my family is also still sick with coughing and mucus till this day, I also always have a feeling of being weak even tho I’m pretty strong and workout regularly, I asked the girl I fooled around with if she gave me any stds and she got upset with me and told me she didn’t give me anything, I still see her around sometimes but she ignores me and doesn’t talk to me, whatever this is it’s real and I just want the nightmare to end, being healthy is a human right, I probably will never stop tested for hiv until I find out what’s wrong with me depression and anxiety has taking over my life the last 5 years I have cut off so many friends and I am afraid to date any females,
|
|
|
Post by Keeponrolling on Sept 16, 2020 5:20:43 GMT
Hello every I been reading this forum since 2015, but never posted, on feb 14 2015, I messed around with a girl I knew for a few months, we didn’t have sex but her vaginal fluid ended on my penis head when she masturbated me with her hands, after the masturbation ended I felt a weird tingling feeling through my body, I thought nothing of it, fast forward to April 2015 I got a really bad cold for a week and then it went away, but in May 2015 I started to get a sore throat and had tonsil stones, the doctor did a test for strep throat and it was positive, they gave me antibiotics to clear the strep and it cleared, but the sore throat never fully went away, I also started to get other symptoms at this time such as spit always stuck in the back of my throat and muscles aches, I had a bubbly rash on my arm that went away after 2 weeks, I started to get a burning pain in the head of my penis, sharp pain in the palms of my hands, I develop dark circles under my eyes, and my face muscles became severely swollen and my jaw joints started to click and pop and the right side of my jaw became dislocated, I became severely depressed starting around 2016 and wouldn’t leave the house, I started eatting to much junk food and became 200 pounds, around this time in 2016 my family in my house also became infected( due to dirty towels i used to masturbate) they also have chronic cough and clearing of mucus from the throat, I was going crazy thinking it was hiv I been tested around maybe 50 times are more for hiv and other stds and have never shown positive, no doctors can figure out the cause of my symptoms, I have been to countless doctors including infectious disease doctors, I even had aperiomics test done on my blood and it shows negative for no infections fast forward to 2020 and I have developed heart disease from the way I was eatting, I still have coughing and mucus in my throat and burning pain in my penis and pain in my hands till this day, my face pain and tmj issues have gotten better with treatment, my family is also still sick with coughing and mucus till this day, I also always have a feeling of being weak even tho I’m pretty strong and workout regularly, I asked the girl I fooled around with if she gave me any stds and she got upset with me and told me she didn’t give me anything, I still see her around sometimes but she ignores me and doesn’t talk to me, whatever this is it’s real and I just want the nightmare to end, being healthy is a human right, I probably will never stop tested for hiv until I find out what’s wrong with me depression and anxiety has taking over my life the last 5 years I have cut off so many friends and I am afraid to date any females, Hi Bob, I recognize myself in your story especially the reaction from the girl afterwards. I asked her 4 times during the first 2 years (like 4 text messages) right away, after the 2nd message started threating me with getting the cops involved cause I was stalking her. After I told her that was fine as I knew something was wrong she dropped it right away. But still to me it seemed wortheless asking her about it after the 4th try as the 3th and 4th try she said she was fine so I guess that is it and should be satisfactory for me.
|
|
|
Post by Friend on Sept 19, 2020 18:00:56 GMT
|
|
|
Post by ltsufferer on Sept 30, 2020 11:42:57 GMT
Hello every I been reading this forum since 2015, but never posted, on feb 14 2015, I messed around with a girl I knew for a few months, we didn’t have sex but her vaginal fluid ended on my penis head when she masturbated me with her hands, after the masturbation ended I felt a weird tingling feeling through my body, I thought nothing of it, fast forward to April 2015 I got a really bad cold for a week and then it went away, but in May 2015 I started to get a sore throat and had tonsil stones, the doctor did a test for strep throat and it was positive, they gave me antibiotics to clear the strep and it cleared, but the sore throat never fully went away, I also started to get other symptoms at this time such as spit always stuck in the back of my throat and muscles aches, I had a bubbly rash on my arm that went away after 2 weeks, I started to get a burning pain in the head of my penis, sharp pain in the palms of my hands, I develop dark circles under my eyes, and my face muscles became severely swollen and my jaw joints started to click and pop and the right side of my jaw became dislocated, I became severely depressed starting around 2016 and wouldn’t leave the house, I started eatting to much junk food and became 200 pounds, around this time in 2016 my family in my house also became infected( due to dirty towels i used to masturbate) they also have chronic cough and clearing of mucus from the throat, I was going crazy thinking it was hiv I been tested around maybe 50 times are more for hiv and other stds and have never shown positive, no doctors can figure out the cause of my symptoms, I have been to countless doctors including infectious disease doctors, I even had aperiomics test done on my blood and it shows negative for no infections fast forward to 2020 and I have developed heart disease from the way I was eatting, I still have coughing and mucus in my throat and burning pain in my penis and pain in my hands till this day, my face pain and tmj issues have gotten better with treatment, my family is also still sick with coughing and mucus till this day, I also always have a feeling of being weak even tho I’m pretty strong and workout regularly, I asked the girl I fooled around with if she gave me any stds and she got upset with me and told me she didn’t give me anything, I still see her around sometimes but she ignores me and doesn’t talk to me, whatever this is it’s real and I just want the nightmare to end, being healthy is a human right, I probably will never stop tested for hiv until I find out what’s wrong with me depression and anxiety has taking over my life the last 5 years I have cut off so many friends and I am afraid to date any females,
|
|
|
Post by ltsufferer on Sept 30, 2020 11:43:16 GMT
Bob, I feel your pain. Please stop testing for HIV - it will only increase your anxiety and I am sure doctors have told you that it isn't HIV. The tests are conclusive and if that weren't enough your symptoms are not the same. There is a discussion group on Discord (AIMED) of people who have suffered from the same thing. FWIW, I have had this for over 25 years.
All the best to you.
|
|
|
Post by sofredor on Oct 2, 2020 20:17:48 GMT
I found this forum more, after so many that have already been closed and no one finds anything, and my family and I continue to suffer, RAVI for example was in the other forum too that I remember - that the suffering every day closed knows why, after a lot of research in a thousand forums, what we have for sure is morgellons, which unfortunately doctors treat as delusional parasitosis, my family, any and all cursed people who stay a long time close to this disease, which is a thousand times worse HIV, my grandmother died of this and no doctor discovered anything, who says that this is HIV know is wrong, the animals in my house and from relatives all became sick too .... so HIV does not catch animals, that is, it is a zoonosis , the damn COVID-19 is there to prove that medicine doesn't find everything unfortunately ....
|
|
|
Post by sofredor on Oct 2, 2020 20:22:51 GMT
|
|
|
Post by roastbeef on Oct 29, 2020 2:28:14 GMT
Hello every I been reading this forum since 2015, but never posted, on feb 14 2015, I messed around with a girl I knew for a few months, we didn’t have sex but her vaginal fluid ended on my penis head when she masturbated me with her hands, after the masturbation ended I felt a weird tingling feeling through my body, I thought nothing of it, fast forward to April 2015 I got a really bad cold for a week and then it went away, but in May 2015 I started to get a sore throat and had tonsil stones, the doctor did a test for strep throat and it was positive, they gave me antibiotics to clear the strep and it cleared, but the sore throat never fully went away, I also started to get other symptoms at this time such as spit always stuck in the back of my throat and muscles aches, I had a bubbly rash on my arm that went away after 2 weeks, I started to get a burning pain in the head of my penis, sharp pain in the palms of my hands, I develop dark circles under my eyes, and my face muscles became severely swollen and my jaw joints started to click and pop and the right side of my jaw became dislocated, I became severely depressed starting around 2016 and wouldn’t leave the house, I started eatting to much junk food and became 200 pounds, around this time in 2016 my family in my house also became infected( due to dirty towels i used to masturbate) they also have chronic cough and clearing of mucus from the throat, I was going crazy thinking it was hiv I been tested around maybe 50 times are more for hiv and other stds and have never shown positive, no doctors can figure out the cause of my symptoms, I have been to countless doctors including infectious disease doctors, I even had aperiomics test done on my blood and it shows negative for no infections fast forward to 2020 and I have developed heart disease from the way I was eatting, I still have coughing and mucus in my throat and burning pain in my penis and pain in my hands till this day, my face pain and tmj issues have gotten better with treatment, my family is also still sick with coughing and mucus till this day, I also always have a feeling of being weak even tho I’m pretty strong and workout regularly, I asked the girl I fooled around with if she gave me any stds and she got upset with me and told me she didn’t give me anything, I still see her around sometimes but she ignores me and doesn’t talk to me, whatever this is it’s real and I just want the nightmare to end, being healthy is a human right, I probably will never stop tested for hiv until I find out what’s wrong with me depression and anxiety has taking over my life the last 5 years I have cut off so many friends and I am afraid to date any females, Bob have you tested for HHV8? Your incubation period and symptoms sound like a herpes virus. Also check for EBV and CMV but they are not as exotic as HHV8.
|
|
|
Post by mrunknown on Nov 2, 2020 8:21:27 GMT
Hi everyone, Iam New here. Found my way here going down the route do I have Hiv but constantly test negative ? Pile on a shit ton of anxiety and symptoms that something is wrong with my immune system and you have the perfect storm...
It all started after an encounter in the beginning of last year. Shortly after i started urinating very frequently/testicles would ache a bit and feel heavy. I did a full std panel and came all clean. The encounter in which it isnt even possible to transmit hiv(handjob, kissing, rubbing and touching) would start manifesting in my mind when i got swollen lymphnodes in neck, weird acting achy abdomen where i def can feel something. Cough that wouldnt go away, sore throat. Weird backproblems, red eyes/ dry mouth/ white tounge all came after a while. Ive tested like 7 times for hiv, all 4 gen antigen/antibody tests over a period of 20 months. Even though the encounter last year its almost near impossible To concract hiv. Then i thought of earlier encounters Where risk was very low but yeah it manifested in me that i have hiv but test negative.
To clarify , this didnt happen early on, after 3 months when i got my negative test i let that go.
When symptoms were still around and getting Worse The timeline is something like,
I thought i had testicular cancer(ruled out by several ultrasounds) I thought about bladdercancer(extremely rare in my age) also ruled out I did coloscopy(ruled out a lot of stuff) Then the lymphnodes came, they didnt want To go away(havent still) went to ent, they did CT of neck and upper body, several swollen lymphnodes, they did Fnac(fine needle aspiration cytology) it came back negative. Time went by i started To realise this cant be cancer, To much time has elapsed, to much symtoms getting worse and Then better. Weight loss of 12-14 kg. Then back upp again To my normal weight. I was at loss. I did a couple of blodtests showing normal WBC, except one Where lymphocytes went To 1.0 next time they were back up To 1,7. My wbc was constantly 5-5.5 suddenly on my last test it was 3,7. Anxiety AT MAXIMUM i was 100% i had hiv. Tried getting a nat/pcr test but i was refused, at this point all thought it was all in my head.
To be honest i dont even know What To believe any longer. This theory of an unknown ”thing”(be it fungus, bacterial, virus and so on) being so serious and so easily infects and it being unknown sounds abit farfetched. But Maybe for most people nothing happens? But if many people here saying they infected family and so on Then the that Theory fall aparts and we Are back To it being farfetched.
I just know Iam lost constantly shifting between it being due To Autoimmune disease activaded by some bug/my severe stress/ reactivaded EBV / something Combined with psychosomatic disease and hell even hiv.
For me the worst part has actually bin the fear of hiv and that somehow i have infected family members. Yeah its all fucking crazy.
|
|
|
Post by John on Nov 5, 2020 1:58:13 GMT
Hi everyone, Iam New here. Found my way here going down the route do I have Hiv but constantly test negative ? Pile on a shit ton of anxiety and symptoms that something is wrong with my immune system and you have the perfect storm... It all started after an encounter in the beginning of last year. Shortly after i started urinating very frequently/testicles would ache a bit and feel heavy. I did a full std panel and came all clean. The encounter in which it isnt even possible to transmit hiv(handjob, kissing, rubbing and touching) would start manifesting in my mind when i got swollen lymphnodes in neck, weird acting achy abdomen where i def can feel something. Cough that wouldnt go away, sore throat. Weird backproblems, red eyes/ dry mouth/ white tounge all came after a while. Ive tested like 7 times for hiv, all 4 gen antigen/antibody tests over a period of 20 months. Even though the encounter last year its almost near impossible To concract hiv. Then i thought of earlier encounters Where risk was very low but yeah it manifested in me that i have hiv but test negative. To clarify , this didnt happen early on, after 3 months when i got my negative test i let that go. When symptoms were still around and getting Worse The timeline is something like, I thought i had testicular cancer(ruled out by several ultrasounds) I thought about bladdercancer(extremely rare in my age) also ruled out I did coloscopy(ruled out a lot of stuff) Then the lymphnodes came, they didnt want To go away(havent still) went to ent, they did CT of neck and upper body, several swollen lymphnodes, they did Fnac(fine needle aspiration cytology) it came back negative. Time went by i started To realise this cant be cancer, To much time has elapsed, to much symtoms getting worse and Then better. Weight loss of 12-14 kg. Then back upp again To my normal weight. I was at loss. I did a couple of blodtests showing normal WBC, except one Where lymphocytes went To 1.0 next time they were back up To 1,7. My wbc was constantly 5-5.5 suddenly on my last test it was 3,7. Anxiety AT MAXIMUM i was 100% i had hiv. Tried getting a nat/pcr test but i was refused, at this point all thought it was all in my head. To be honest i dont even know What To believe any longer. This theory of an unknown ”thing”(be it fungus, bacterial, virus and so on) being so serious and so easily infects and it being unknown sounds abit farfetched. But Maybe for most people nothing happens? But if many people here saying they infected family and so on Then the that Theory fall aparts and we Are back To it being farfetched. I just know Iam lost constantly shifting between it being due To Autoimmune disease activaded by some bug/my severe stress/ reactivaded EBV / something Combined with psychosomatic disease and hell even hiv. For me the worst part has actually bin the fear of hiv and that somehow i have infected family members. Yeah its all fucking crazy. Welcome to this unfortunate club. You basically summed it all up in one hit. Realistically, nobody knows what is behind this. A few people are quite loud with their theories about parasites or fungus etc but nobody knows. Hopefully one day enough people will get together to make some noise, but it really doesn’t seem to spread fast, still so few people in these groups, even after ten years. You might be right about only certain people having this reaction. Could explain why there are so few people in this predicament, even when it supposedly transmits via saliva.
|
|
|
Post by John on Nov 5, 2020 2:08:25 GMT
Just know that you aren’t going crazy, this thing is real and it’s going to deteriorate your health slowly over a few years. Make the most of life, and I think it’s most important to look after your body/diet while you can and slow down the speed of this thing. The discord group can be helpful too just to know there are others out there dealing with the same thing
|
|
|
Post by mrunknown on Nov 6, 2020 10:22:35 GMT
Hi again, Thanks for your reply John. It is a crazy situation.
Has anyone done extensive testing over time and done a nice writeup of this? I mean some of the symptoms people are experiencing, if they proceed To get worse and life threatening it would be impossible to have normal bloodworks and certain organ/ body specific work ups would be totally off. Also if this thing spreads this easily and is as serious as hiv, How would it be possible that it is not much more known? Why Are we only like 30-50 people that have posted. In our digital time and age we would be exponentially more of us online finding each other. Nog like this, outlier/fringe type of thing.
My rbc has bin normal for 2 years now. My wbc has bin weird. Lymphocyte count gone from 1,8 To 1,0 To 1,7 during a year. My neutrophil count gone from 3,4 To 3 To 1,8 now in one year. All of these Numbers Are within normal range, but Thats only true when you think of normal counts within the population. It Is not normal To have these changes for a single person. I have done a fine needle aspiration of largest lymphnode that came back negative(nothing was found). I was found strongly positive for anti ssa antibodies. They Are usually present in many different autoimmune diseases.
I cant seem to find the Discord group, is it gone?
|
|
|
Post by jz on Nov 10, 2020 5:04:10 GMT
30-50 ppl?? There have been hundreds of posters on the various forums over the years. Maybe even a thousand. If you include the Chinese and Russian forums there have been many many more. Not to mention the tens of thousands of people on lyme/bartonella/CFS boards, many of whom probably have this. Discord: discord.com/channels/634684014082523141/634684014086717447
|
|
|
Post by mrunknown on Nov 10, 2020 8:30:46 GMT
30-50 ppl?? There have been hundreds of posters on the various forums over the years. Maybe even a thousand. If you include the Chinese and Russian forums there have been many many more. Not to mention the tens of thousands of people on lyme/bartonella/CFS boards, many of whom probably have this. Discord: discord.com/channels/634684014082523141/634684014086717447Okey, I didnt mean to be rude. I just dont know what to believe. I cant discord using that link in the mobile app. Am I doing something wrong?
|
|
|
Post by sofredor on Nov 11, 2020 12:30:41 GMT
What is the Russian forum again? right at the beginning of this I read all the possible forums in the world about it .... and I no longer have the link to the Russian forum ... if you can pass it to me, the Chinese I read every day yet - for nothing - in the hope that someone will find it this business ..... but the Russian never read it again and lost the link .... the only positive test since July 2018 was lyme disease - 2 years old - no medical doctors don't believe there is lyme, only um, I’m treating him, taking three antibiotics for 15 days, the symptoms improved a lot, but they didn’t clear, but I don’t believe it’s lyme but similar zoonosis, a spirochete that’s in the air - morgellons theory, unfortunately doctors don’t interest in our disease, because most people can't look at the next person, but only at themselves, so they end up accepting what the doctors identify, cancers generally and etc., but it's not HIV and they don't find the cause of this disease because that's why people don't get him out of his head ... animals too they get it (it's a zoonosis) ...
|
|