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Post by mokao123 on Nov 5, 2018 14:10:11 GMT
I went to virus Expert and HIV Expert in Rome at the National Institute of infection disease. I tell my sexual exposure and they made me di an HIV test. That Result negative After 20 days of exposure and when i go back to take the Result the Expert said that with cunnilingus noone ever contracted HIV, also if i swallow vaginal liquid and if vaginal liquid touch my gland. Doctor talk me 20 minutes and didin't check Blood exams, didnt make me more exams, no STD exams, nothing of nothing and told me to go to psicologist. Don't care i have fewer, diharrea,trush and more. So i start to make exams by myself to found low cd4 and gram positive bacteries. This is the professional doctors we have in Italy that don't care your status. Only 1 doctor make me more exams but Only about virology hbv,hav,hcv,syphils and bactrriological parasite check, but everything negative so She told me that i had an infection but don't know which one. So if now i feel better means that infection Is solved...my question..how HIV infection works? Or retrovirus works? Step 1 --> acute infection, step 2 --> latency (no symptoms for months years), step 3 --> immunodeficency. I read medical documents and listen to ppl that contracted HIV (mainly Who Result positive is to HIV type B the most common and the One most studied for therapy too) that After infected usually had dermatitis in head and weak nails...i'm 40 ad i said and i never had dermatitis and my nails were more cute and strong and lucid than a woman has. For High IgE told me to go to allergiest doctor. That when visitated me told me...you don't have allergies....IgE Can bè High for infection too, in what you explain me and symptoms, you have tonfo ti an infection Expert.... This is Italy... What your best HIV hospital your country.Can you go there and ask for details?
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Post by mokao123 on Nov 6, 2018 5:34:57 GMT
How many cfs patient in usa
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Post by In the beginning on Nov 6, 2018 14:05:16 GMT
There are very many cfs patients in America.
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Post by mokao123 on Nov 6, 2018 15:10:53 GMT
There are very many cfs patients in America. about 2000 000 patient?is There any drugs for them?
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Post by In the beginning on Nov 6, 2018 17:25:58 GMT
If you are specifically looking into cfs I can recommend these 2 forums. I’m reading up on many things but am not the most knowledgeable on any single one. These guys are really the center of all that. The same guy opened both but had partners and parted ways on the “Phoenix” one then opened the “health” one himself. You may find answers there that we don’t have if you are specifically looking into cfs. www.healthrising.org/forums/forums.phoenixrising.me/index.php
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Post by Tired on Nov 7, 2018 8:33:20 GMT
Is anyone having gum/teeth issues? Receding gums and tooth decay
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Post by In the beginning on Nov 7, 2018 12:42:57 GMT
Yes and yes. During initial symptoms I actually had a molar lightly chip on me. Now I’ve got half a molar.
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Post by smartclever on Nov 7, 2018 19:47:11 GMT
[quote author=" mokao123" What your best HIV hospital your country.Can you go there and ask for details?[/quote] As I told I went to the national institute of infection disease, the one that is referred for the national reporting of infection disease. When I went first time doctor talk to me for 20 minutes and explained me about infection and transmissibility and that in 30 years of hiv noone contracted hiv from cunnilingus and that my hiv test at 22 days was negative and don't need to repeat. Then I would like to believe that is as she said, but I continue to feel bad and have fewer and other symptoms. So I back again to that center to talk again with that hiv specialist but she talk to me outside the room where other people were waiting and screamed to me to fuck off and go away and go to psicologist because they don't wanna waste their time with crazy people. That s all
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Post by mokao123 on Nov 8, 2018 1:35:40 GMT
[quote author=" mokao123 " What your best HIV hospital your country.Can you go there and ask for details? As I told I went to the national institute of infection disease, the one that is referred for the national reporting of infection disease. When I went first time doctor talk to me for 20 minutes and explained me about infection and transmissibility and that in 30 years of hiv noone contracted hiv from cunnilingus and that my hiv test at 22 days was negative and don't need to repeat. Then I would like to believe that is as she said, but I continue to feel bad and have fewer and other symptoms. So I back again to that center to talk again with that hiv specialist but she talk to me outside the room where other people were waiting and screamed to me to fuck off and go away and go to psicologist because they don't wanna waste their time with crazy people. That s all[/quote] so they must know something.thing will be diffirent if they wre infect . they are fear that you come close by them。they are murderer
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Post by Tired on Nov 8, 2018 1:49:37 GMT
Thanks ‘In the beginning’ - do you have any tips for oral health? I feel like my teeth and gums are decaying every day and I can’t stop it. It’s horrible.
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Post by In the beginning on Nov 8, 2018 5:19:45 GMT
Sadly I don’t. I just brush daily and rinse with listerine or peroxide. It is one of the sad inescapable reminders of the current situation that I wake up to daily. Aside from a terrible terrible taste/smell I’ve also had fordyce spots on the inside of my upper lip, a kanker sore located on the gum where said chipped molar is located, and tonsillitis in my left tonsil which have all also yet to resolve(I no longer think that’s a possibility). I went to an ent which is an ear nose and throat specialist and he said it could be cause for concern and would be something to keep an eye on and told me to come back in 3 months(thanks a lot). 3 months went by and tbh I’m just so frustrated and broke at this point I just canceled the appointment. Something unrelated to the oral issues I’m going to have checked into down the line is also anemia, my cbc chowed characteristic of anemia. I will get back in touch with the ent so he can see all issues are still unresolved once I’m out of debt. I know it’s ass backwards but at this point if they will not acknowledge the sickness all we can do is try to stay on top of documenting and treating symptoms. If we are hiv positive ideally what I would like to see out of this is documentation that we’ve been hiv positive for quite some time and it Taking more than 3 to 6 months for a positive diagnosis occurs far more often than they would like to admit. I truly don’t know what we have but my gut tells me hiv. If so I’d like to start some type of website/database for people to log their story and share their account of their infection taking an extended period of time to seroconvert so that the establishment can deny all they like but at least there would be plenty of easily accessible accounts of individuals like us going through This. So people would not be told they are crazy and the lies the hiv establishment pushes about seroconversion and how non infectious hiv is would be called out for what they are. And that is nothing short of an extrapolation of “facts” based 100 % on faulty seroconversion times.
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Post by Tired on Nov 8, 2018 6:02:58 GMT
Thanks bro. My mouth is the worst symptom, constant reminder that I’m ill. Feel my teeth and gums wasting away and there’s nothing I can do.
My CBC showed I have low b12. Doctor got me to do a follow up test to see if I need b12 injections. I was looking at her like....do you seriously think it’s just a coincidence that an otherwise healthy meat-eating person now suddenly requires b12 injections?...or is that just ‘psychomatic’ as well....seriously.
Yeah my gut was that it is hiv, but now I’ve read so many forums and pages about different viruses and bacteria etc that I literally have no idea...Hey I saw a post from Wilson10, the old admin, posting on that “chronic sore throat” wordpress page, around the time that the old forum got deleted. He was saying he didn’t know why it was shut down and was trying to figure it out. Anyone heard from him since?
Also sorry if you’ve already said, but how long have you had this, Inthebeginning?
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Post by Tired on Nov 8, 2018 6:22:00 GMT
I wasn’t part of the old forum, but did anyone there report AIDS-related opportunistic illnesses? Like PCP, Kaposi Sarcoma, etc?
It’s just weird that I have not seen a single post where a regular poster has come back saying either of these things:
1. Finally tested HIV+ 2. I’m cured and no longer ill 3. I developed AIDS/cancer/I’m in hospital about to die
Surely everyone would have to have had one of those three scenarios?
I guess the other alternative is that they just died a very sudden death....?
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Post by In the beginning on Nov 8, 2018 21:21:20 GMT
How long I’ve been dealing with this is a tricky one. I’ve put myself at risk in the past and have dealt with a multitude of these symptoms in the past but never ever ever the way I have since this past February. What I have been dealing with long term is arthritis and diarrhea and sore throat and swollen nodes. Honestly chose to write it off but after my February exposure all hell broke loose and made it impossible for me to write off. My wife even went to the hospital and was in there for a half months because they could not figure out what was wrong back in 2013. But all returned to normal and I still had the gall to write it off. Some people claim it to have resolved, some give up paying it extra attention. Honestly after 5 or 6 years I can only imagine once your comfortable wearing your new “less healthy skin” how long can you really carry a torch for? All the whilst making no progress toward a diagnosis besides drs acknowledgement of peculiar findings. If you read the ehealth forums all the way through you’ll see many just had to walk away from the fixation because despite being less healthy there was no diagnosis or resolution to the situation. So people just got on with their less healthier life. Others may very well have died which is very possible but I don’t doubt that moderators may have wiped those posts as not to cause a panic also the individuals suffering themselves may not have wanted to cause a panic among others going through the same thing who have no course of action than to ride it out. Imagine if there were scores of people saying they were dying on support forums and you thought you had the same thing. Probably just freak others out more for fear that will one day. E them. I can say if you look at the cfs forums there are quite a few people who have died as a result of. If you look at the couple links i posted for cfs forums and click on the memoriam thread you’ll see there’s plenty. I can tell you that if you look up the guy I mentioned queb32 or 23 (the guy I mentioned in a previous post) he started posting in 2011 on various sites and returned in 2017 after a long time off the radar to say that his and his wife’s life have gone pretty much back to normal so to believe your tests if negative. Most of the diseases up for discussion that could be related to our are sickness rely on an assessment type test or process of elimination diagnosis. IE it’s not this or that or the other so must be said thing that does not have a cut and dry test for diagnosis. Personally I feel like it lines up far too closely with hiv to be anything else. I however feel that whether it was through botched vaccination attempts where “inactive” portions of the virus were used or a mutated version emerged due to antiretroviral therapy this looks far too much like hiv (in my case anyway) for me to come to any other conclusion. Remember the people we are relying on to admit that whatever we have is real are also the same people who needed hiv to be irrefutably kicking the worlds ass before any acknowledgement occurred in the 80s. Also as history has proven acknowledgement that anything is going on would ultimately mean the government would have to designate government money to the research of said disease. I feel they look at it like “well we learned our lesson admitting that hiv was real. Let’s not open another can of worms like that again.” There was no quick resolve with that n that’s become an annual issue they dedicate money that they clearly would rather not have to. I think that’s why Judy mikovitz and the xmrv issue got her jail time until all research materials were handed over. Then she was free as a bird but required to hush up for some mandated period of time. Lastly most people catching this are over 25. I don’t doubt that the out with the old and in with the new logic may be the issue here. If we say 18-25 are the largest consumer I can’t see why the powers that be would have a problem with us biting the dust in the first place. Tired if you have an email you’d care to share I’d be happy to get in touch. Otherwise open discussion here is fine with me. Keep your head up and I hope your doing better daily. Sorry if I forgot to acknowledge any other questions you asked. Did this on and off in between the days tasks.
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Post by Tired on Nov 12, 2018 1:00:55 GMT
Thanks so much for the response. I’m feeling way better these last few days.....think I might try to pretend I’m fine and stay off the forum for a bit. Keen to email though - are you in the Phoenix Rising forum? - if so send me a PM, ‘Tired33’
Cheers
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