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Post by ashyami86343 on Nov 2, 2018 10:57:03 GMT
Guys, Glad to see lively conversation. Yes we are struggling to get diagnosed and solution, we know at this moment diagnosing is not possible probably the medical mafia's are hiding something. The more i read the more i get but all are stopped with a question mark like
1. the Dr. who are was analysing about autism is died in the beach shore in USA, by a unknown killer. 2. Karen Lambert, a infected person like us in 2006 who fought for diagnosis went and paid lot of researchers and publishing CFS = Negative Aids, missing from 2015. 3. China government statements for the infection. 4. Dr. Nemecheck research on HIV is directed to chrnoic patients
why these are ?
For me, after all 3yrs of my research i am aligning with China patients, this will spread by Saliva, Sweat, Blood & skin touch..& this is non hiv as Karen says, it will lead to CFS. Who ever has the Ear infection, white tongue, burning / foamy urination just heal your stomach & follow strict diet to balance your PH value, things will fade.
What does not go of is... swollen veins, which will cause ear issues, sore throat ( globus .. swollen nerve in esophogus), sinus, chronic meningtis etc..
my biggest worry is my 4yr son diagnosed with ADHD, because of me.
I strongly deny- infecting others is not good thing and not going to help us, we should not see others struggling of the same issue we have. please try to avoid as possible you can.
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Post by In the beginning on Nov 2, 2018 14:36:16 GMT
I understand the want to be proactive and try to figure things out. But infecting others will not get any answers. It will only ruin innocent lives and put more money in the pockets of the medical industry. An industry who has no interest in acknowledging that something is going on. They developed multiple diagnosis’ that share a multitude of the same symptoms so that one singular illness does not have all of the diagnoses. human immunodeficiency virus/ Gulf war syndrome/ myalfic enchalopathy/ chronic fatigue syndrome/ multiple sclerosis/ chronic fatigue immune deficiency syndrome/ Lyme. They are all incredibly similar. Feel free to cross reference and read up on all those and tell me what you come up with. As far as hiv only being transmissible through blood and sexual fluids I find that to be flawed in the sense that they are operating on the assumption that infection will present in 3 to 6 months otherwise you have not been infected. Then they tell you to go out and live your life and feel free to go have more sex and in the event you turn positive much further down the line they disregard the actual exposure and insist it must be from a more recent exposure. I feel as though the best move at this point is to find a good infectious disease dr to run periodic tests for infectious disease like hiv etc. also get in contact with a quality immunologist to track any trends with cd4/cd8 etc and also get an mri done to see if there are any issues occurring within the brain(central nervous system). If you are like me and experiencing muscular spasms/twitching while awake or sleep it is probably a good idea to inquire about the MRI. Couple references to check out here. www.sciencedaily.com/releases/2017/03/170313085308.htmwww.georgetown.edu/news/new-findings-in-gulf-war-illness-study-at-georgetown.html
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Post by In the beginning on Nov 2, 2018 16:27:50 GMT
****myalgic encephalopathy
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Post by In the beginning on Nov 2, 2018 18:18:16 GMT
Here is an additional mri link that also connects the dots of the hiv cfs me ms gws connection I mentioned earlier. I had trouble finding it at the time of post. The previous links were in relation to ms/hiv/gws. This link discusses the similar correlation with cfs and being able to use mri as a tool for detection. Sorry that the info is a bit spread out but it’s hard to for me to relocate all these at any given time when a particular aspect of the discussion is addressed. www.eurekalert.org/pub_releases/2014-10/rson-mib102314.phpAlso in relation to the suspicious deaths of microbiologists/molecular biologists. There are a wealth of them. Some short and to the point and some incredibly detailed Feel free to do a google search of: microbiologist suspicious deaths Microbiologist mysterious deaths Molecular biologist suspicious deaths Molecular biologist mysterious deaths You’ll find there’s certainly no shortage of information pointing to a trend of highly suspicious deaths that have been ongoing since the 90s till current day. There’s also the Malaysia flight that was sabotaged. What’s seldom referenced is this. time.com/3003840/malaysia-airlines-ukraine-crash-top-aids-researchers-killed-aids2014-mh17/
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Post by smartclever on Nov 3, 2018 15:04:59 GMT
I understand the want to be proactive and try to figure things out. But infecting others will not get any answers. It will only ruin innocent lives and put more money in the pockets of the medical industry. I'm not infecting others. For medical expert in disease I don't t have any infection. So?? I'm not infected so I can donate. Other are innocent? Why? I'm not innocent? In my life I got many bad things because humans are the worste animal in the world. I'm sorry, this will be like bad, but is my life, I don t care anymore life of others that don't care about mine.
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Post by In the beginning on Nov 3, 2018 18:39:42 GMT
I am not speaking about the legality of the situation but more so about the morality of the situation. Legally it has not been proved that you are infected with anything however you are here on this forum because you personally know something is very wrong. Despite what drs are telling you, you continue to come here to seek counsel. Myself personally I feel my responsibility as a humanitarian makes me want to protect others from the harm this disease could cause them. I care about the well being of others and would not want to harm another with the physical and psychological damage that comes along with this condition. You speak of others who “don’t care about your well being so why care about theirs?” I understand the concept of an eye for an eye. But retribution would mean in some way causing harm to the one who knowingly infected you. However you are talking about lashing out at all the people in the world due to your anger at the one singular person who infected you. It is a flawed logic and it sounds like a bad way to cope with your anger. This logic may cause you to make enemies out of potential allies. You at one point called yourself an innocent in this. Now you wish to adopt the ideology of the “bad guy” who infected you and didn’t care enough to protect you? I hope you change your logic on the matter but nobody can make you. I wish you all the luck in finding healthier ways to cope.
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Post by smartclever on Nov 3, 2018 21:22:39 GMT
All my life turn around others, at works, and everywhere else. Seems like if others wanna "win" against me. Seems like if other life is more important then mine! I'm sorry...but if I feel very bad and doctor don t believe me and told me to go to specialist of psyche because I'm crazy, I don t accept this. My family too thought I was just crazy, that I lost weight because I was worried, that I woke up at 2 am every day because worried, that I had erectile disfunction and all other neurological problems because worried, but noone care about fewer, sore throat, diahrrea, purple spot in mouth, Trush and Candida on penis and other and other. For who I wanna near me to understand what happen that I ask to come to doctor with me the result was that doctor said everything normal and I must find the origin of my malaise with some other kind of specialist....is it normal? In my mind I hope sons of these doctors will be infected with what I think I'm infected so I want to see what they will do for them...try to find the infection or let them go to mental doctor. I study a lot about infection disease more then 1 year and noone wanna listen to my study and research? The last doctor told me...who take write MD on this shirt? What you wanna think? Is like if someone aim at me with a gun and I no try to save myself if this means to kill someone else? Maybe if more people and more feel bad they will try to isolate this virus don't u think? How they do with the first human immunodeficiency virus? After many young guys with pneumonia go to hospital they research about the disease.
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Post by Tired on Nov 5, 2018 0:09:57 GMT
Thanks for the info ‘In the beginning’, all really good stuff.
Have you had an MRI?
Even with these tests we get, it seems like doctors will acknowledge our unusual results but it still doesn’t lead to a diagnosis or treatment. So the outlook appears to be that we will live for years (?) with our bodies and brain slowly deteriorating. I’m just worried about what happens after that.......like you mentioned with Karen, everyone on old forums and message boards just disappears after a while. No updates - neither positive nor negative. Are they just dying or what?
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Post by Tired on Nov 5, 2018 1:03:23 GMT
Smartclever, I totally understand. When you have a doctor telling you it’s “all in your head”, it’s quite insulting, so it’s natural to react with an attitude of wanting to prove them wrong. And yes, the only way they would take it seriously is if more people presented with the symptoms, or as you said, if their child had it. I have had the same thoughts.
But I think I agree with the other guys. And even if you donated blood, what, a few unrelated individuals would appear with symptoms in different parts of the country and get dismissed by their doctors as well. It won’t help anyone.
For those with partners - what explanation has the doctor offered considering both of you have symptoms? Surely they would at least acknowledge there is some contagious pathogen involved?
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Post by mokao123 on Nov 5, 2018 2:28:39 GMT
I am not speaking about the legality of the situation but more so about the morality of the situation. Legally it has not been proved that you are infected with anything however you are here on this forum because you personally know something is very wrong. Despite what drs are telling you, you continue to come here to seek counsel. Myself personally I feel my responsibility as a humanitarian makes me want to protect others from the harm this disease could cause them. I care about the well being of others and would not want to harm another with the physical and psychological damage that comes along with this condition. You speak of others who “don’t care about your well being so why care about theirs?” I understand the concept of an eye for an eye. But retribution would mean in some way causing harm to the one who knowingly infected you. However you are talking about lashing out at all the people in the world due to your anger at the one singular person who infected you. It is a flawed logic and it sounds like a bad way to cope with your anger. This logic may cause you to make enemies out of potential allies. You at one point called yourself an innocent in this. Now you wish to adopt the ideology of the “bad guy” who infected you and didn’t care enough to protect you? I hope you change your logic on the matter but nobody can make you. I wish you all the luck in finding healthier ways to cope. drug company cant make money without enough patient。
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Post by In the beginning on Nov 5, 2018 5:13:03 GMT
Hello tired. I at this point feel like your pretty spot on with your assessment. I feel like at this point we’ve probably got 10 to 30 years left. I’m currently dealing with all the debts from all the dr visits I’ve already found. I feel that the course of action I’ve layed out is probably the best way to go about it. An immunologist will be able to inform you if you’re in any real danger due to level of immune function. Infectious disease dr will let you know if anything turns up on your tests. and the mri will inform you of any lesions or thickening of brain matter. And from there if anything gets red flagged hopefully a course of action can be decided then. I just think the rest our days is gonna be a bumpy ride. I’m just trying to stay on top of my health and trying to find a peaceful state of mind. Because this has bn nothing short of hell on earth. My infectious disease dr continues to advise hiv tests due to my wifes and my own symptoms. I’m actually talking to an idiopathic lymphocytopenia patient and she’s still alive and kicking with cd4 of between 30-60 since 2013. She’s bn diagnosed by the cdc and working with them since. Unfortunately her drs can do nothing but monitor her. She flat out told me her drs have told her that they don’t know how she’s still alive. So unless a cause is determined there’s no protocol on cases like this besides hang in there n keep your head up. But by digesting what I no longer have control over I am doing my best to make the most of the life I’ve got. I used to wonder if I’d see 100. Not so much these days. Life’s a bummer and I used to light up the room.
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Post by Tired on Nov 5, 2018 10:31:42 GMT
Damn. You seem like a really good dude. Feeling for you bro. You’re so right - all you can do is accept the reality and try to enjoy what you can. It is hard to keep that mindset though...difficult not to get down. Just gotta hang in there I guess
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Post by mokao123 on Nov 5, 2018 12:47:39 GMT
Smartclever, I totally understand. When you have a doctor telling you it’s “all in your head”, it’s quite insulting, so it’s natural to react with an attitude of wanting to prove them wrong. And yes, the only way they would take it seriously is if more people presented with the symptoms, or as you said, if their child had it. I have had the same thoughts. But I think I agree with the other guys. And even if you donated blood, what, a few unrelated individuals would appear with symptoms in different parts of the country and get dismissed by their doctors as well. It won’t help anyone. For those with partners - what explanation has the doctor offered considering both of you have symptoms? Surely they would at least acknowledge there is some contagious pathogen involved? More rich people .powerful people will be better.this spread easily then HIV.that make is possible.
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Post by smartclever on Nov 5, 2018 13:05:56 GMT
This is a great question...and just to tell you. I have a partner and after this event I stop to have unprotected sex with her to protect her. I did a mistake, but if there is someone that must pay is only me. I don't want to let be her in trouble for this. My fault, I pay. And really....would make me more in peace if I got an HIV positive test then be in this limb...
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Post by mokao123 on Nov 5, 2018 13:51:30 GMT
This is a great question...and just to tell you. I have a partner and after this event I stop to have unprotected sex with her to protect her. I did a mistake, but if there is someone that must pay is only me. I don't want to let be her in trouble for this. My fault, I pay. And really....would make me more in peace if I got an HIV positive test then be in this limb... Not her .others.high level .
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