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Post by nick1989nc on Mar 8, 2019 22:09:49 GMT
Hope all are still hanging in there. It has been 15 months since i got the illness myself. The worse remaining symptoms for me dry mouth, white tongue, folicutis and dry skin.
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Post by wheretolook on Mar 13, 2019 14:19:03 GMT
Hi again,
Sorry not being here, I was in an accident and had herniated discs at my back and still on going problems.
I am here with almost 3.5 years with the mystery illness. I still have foliculites, dry skin, some lymph nodes on and off, random pain at abdomen, tongue mouth sores...etc. However, I feel better for longer periods than being sick. I am not like before to be sick almost all time. Good days are more than bad days. I think my body is getting used to it. But this pathogen will never forget me between time to time hit me hard.
I am very disappointed the way research in medical institutions is going, not being able to detected this pathogen. Time just fly and we are here same.
Any updates, I see this forum not active ?
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Post by Keeponrolling on Mar 13, 2019 16:42:14 GMT
Hi wheretolook.
Indeed this forum is less active. Once in a while a post from people. But it is still a steady group with known people.
Also good to hear you are doing better. After almost 30 months I have the same symptoms. They seem to subside a bit. Except for the follilicus, bit more tired, eyegloaters. Etc. but got used to it and just living with it now...
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Post by Hou tx on Mar 15, 2019 2:22:16 GMT
Hi wheretolook. Indeed this forum is less active. Once in a while a post from people. But it is still a steady group with known people. Also good to hear you are doing better. After almost 30 months I have the same symptoms. They seem to subside a bit. Except for the follilicus, bit more tired, eyegloaters. Etc. but got used to it and just living with it now... Ive delt with a ton of the acute symptoms. I'm very early in this 9 weeks if tested negative on everything else. I'm glad I've found the sight.. I wondered what happen to all the people I've seen post on other sites of I have it but the test are negative ... in return the site tells you to see a shrink. The only blood work I've seen change is liver alt week 2 alt 42 week 7 alt 84 week 8 alt 64 And WBC count drop from week 7.2 to week8 5.2 I've tested multiple 4th gen and early rna.. I know that I have to wait the three months to be sure it's not hiv.. But when I get on here and see what most of the symptoms your going thru. It hits home big time and relates more to what I'm going thru. The electic tingle is one of the biggest one the docs kept telling me.... That's not a symtom of any thing your fine your negative. I'm dealing with a laundry list of the same symptoms....... I know it's not for sure that I am dealing with the same thing you all are. But if there are any test you all would like me to get in this early stage I would be more than happy to try to add to the data.. just i case I end up being in the same boat........ anyways I plan on becoming a member if I end up testing negative in a few weeks.. sorry for the all over the place post and sorry for posting quoting the person above.. I'm a very active person and this has wrecked my shit in a matter weeks...... Stay strong đź’Ş Once again glad I found this site
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Post by wheretolook on Mar 15, 2019 11:38:42 GMT
Hi wheretolook. Indeed this forum is less active. Once in a while a post from people. But it is still a steady group with known people. Also good to hear you are doing better. After almost 30 months I have the same symptoms. They seem to subside a bit. Except for the follilicus, bit more tired, eyegloaters. Etc. but got used to it and just living with it now... Yes the folliculites will never go away and as I investigated its related more to Bacteria being increased in your body. Please report your CBC specially lymphocytes and neutrophils and watch them. Yes we do not have a choice only living with it. One interesting thing over the years I noticed is increased lipomas in body. Not just me all people I know who got infected, that's 100% and sure. The toxins left by this pathogen will create a ton of symptoms across your body.
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Post by wheretolook on Mar 15, 2019 11:41:07 GMT
Hi wheretolook. Indeed this forum is less active. Once in a while a post from people. But it is still a steady group with known people. Also good to hear you are doing better. After almost 30 months I have the same symptoms. They seem to subside a bit. Except for the follilicus, bit more tired, eyegloaters. Etc. but got used to it and just living with it now... Ive delt with a ton of the acute symptoms. I'm very early in this 9 weeks if tested negative on everything else. I'm glad I've found the sight.. I wondered what happen to all the people I've seen post on other sites of I have it but the test are negative ... in return the site tells you to see a shrink. The only blood work I've seen change is liver alt week 2 alt 42 week 7 alt 84 week 8 alt 64 And WBC count drop from week 7.2 to week8 5.2 I've tested multiple 4th gen and early rna.. I know that I have to wait the three months to be sure it's not hiv.. But when I get on here and see what most of the symptoms your going thru. It hits home big time and relates more to what I'm going thru. The electic tingle is one of the biggest one the docs kept telling me.... That's not a symtom of any thing your fine your negative. I'm dealing with a laundry list of the same symptoms....... I know it's not for sure that I am dealing with the same thing you all are. But if there are any test you all would like me to get in this early stage I would be more than happy to try to add to the data.. just i case I end up being in the same boat........ anyways I plan on becoming a member if I end up testing negative in a few weeks.. sorry for the all over the place post and sorry for posting quoting the person above.. I'm a very active person and this has wrecked my shit in a matter weeks...... Stay strong đź’Ş Once again glad I found this site Save your money and I guarantee to you this is not HIV. I've done more than 200 tests and nothing shows up simply cuz this is a new pathogen.
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Post by Hou tex on Mar 15, 2019 14:48:22 GMT
Ive delt with a ton of the acute symptoms. I'm very early in this 9 weeks if tested negative on everything else. I'm glad I've found the sight.. I wondered what happen to all the people I've seen post on other sites of I have it but the test are negative ... in return the site tells you to see a shrink. The only blood work I've seen change is liver alt week 2 alt 42 week 7 alt 84 week 8 alt 64 And WBC count drop from week 7.2 to week8 5.2 I've tested multiple 4th gen and early rna.. I know that I have to wait the three months to be sure it's not hiv.. But when I get on here and see what most of the symptoms your going thru. It hits home big time and relates more to what I'm going thru. The electic tingle is one of the biggest one the docs kept telling me.... That's not a symtom of any thing your fine your negative. I'm dealing with a laundry list of the same symptoms....... I know it's not for sure that I am dealing with the same thing you all are. But if there are any test you all would like me to get in this early stage I would be more than happy to try to add to the data.. just i case I end up being in the same boat........ anyways I plan on becoming a member if I end up testing negative in a few weeks.. sorry for the all over the place post and sorry for posting quoting the person above.. I'm a very active person and this has wrecked my shit in a matter weeks...... Stay strong đź’Ş Once again glad I found this site Save your money and I guarantee to you this is not HIV. I've done more than 200 tests and nothing shows up simply cuz this is a new pathogen. I'm coming to realize that.... I'm having a hard time getting family and wife to realize it. I have stayed away from her since this happend. Everyone is having a hard time believing I have some rare b.s... that's really not rare... I know where I got it. I keep telling everyone there is a killer on the loose out giving this to people left and right with no repercussions. I thinking to reaching out to the local media. Possibly joe Rogan...... Any thoughts peeps?
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Post by Guest on Mar 16, 2019 11:27:29 GMT
Dude any awareness is great. It’s literally the only thing that will get this sorted. Show them the forum. I have to say, I think everyone just becomes complacent after 6-12 months because the symptoms calm down a little (in comparison to the onset) and you get used to it. So I admire your urgency at the moment
Yes, the problem is that there are no standout symptoms. You know your own body, you know you 10x weaker, you know you feel pain all over your body. But other people can’t see those things so they just don’t get it. The physical symptoms are mild enough for doctors to dismiss - white tongue, eye floaters, skin problems, concentrated urine, etc
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Post by PZ on Mar 16, 2019 22:02:53 GMT
[/quote]One interesting thing over the years I noticed is increased lipomas in body. Not just me all people I know who got infected, that's 100% and sure.[/quote]
That is one of the many symptoms of Acquired Generalized Lipodystrophy (AGL), which is what this is.
Those of you who are early on in this need to take this seriously. You'll feel decent after a year and be tempted to ignore it. Then it will come back hard in Year 5. And eventually (if it is AGL) it will turn into very bad diabetes, kidney and liver failure, and heart disease.
We need to raise money to research this. I think a test for Complement proteins in the subcutaneous fat is a good idea. And a subcutaneous fat culture would potentially turn up the pathogen. I think it is caused by an intracellular pathogen inside adipocytes (subcutaneous fat cells) that is confusing the innate immune system into destroying the fat.
Little research has been done into AGL because there have been something like 100 documented cases in history. With any luck it is an easy thing to crack with a bit of professional research - if a fungus or bacteria are identified as the cause we should be able to wipe this thing out.
Although your symptoms will improve for a time, this does not go away on its own.
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Post by Pablo on Mar 17, 2019 11:02:21 GMT
Have anyone tried alkalic diet something like Dr. Sebi offers? Or other kind of diet like vegan, ketogenic, raw?
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Post by hou tex on Mar 18, 2019 6:05:52 GMT
I started something similar a few weeks ago. It help clear up candida in throat. still a little sore but ive started eating a few normal things here and there. its hard to eat like a turtle.
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Post by hou tex on Mar 18, 2019 6:21:39 GMT
Dude any awareness is great. It’s literally the only thing that will get this sorted. Show them the forum. I have to say, I think everyone just becomes complacent after 6-12 months because the symptoms calm down a little (in comparison to the onset) and you get used to it. So I admire your urgency at the moment Yes, the problem is that there are no standout symptoms. You know your own body, you know you 10x weaker, you know you feel pain all over your body. But other people can’t see those things so they just don’t get it. The physical symptoms are mild enough for doctors to dismiss - white tongue, eye floaters, skin problems, concentrated urine, etc My two year old son is getting sick as we speak. I found this website to late. Ive been hugging on him thinking im going to be dead soon not knowing what the hell is going on. If this shit is really this contagious people need to wake the fuck up.. I think im going to post it on local on the net telling people its in my small area and see if any panic comes of it.. I will donate my body to be dissected to fix my son.... like I said in another post.. this shit is bio warfare like Trump or don't we need to speak this shit to the top..We may not get the help now but this shit has to stop for our next generation..im 30 years old.…. I picked up mine at a local bar...… I feel like its going to spread like wild fire in this area..... I don't know the girl. but thinking how it all went down she knew exactly what she was doing to me. shoved her tongue down my throat and oral.. I was literally just getting started on life and I feel like its coming to a quick end.
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Post by Guest on Mar 18, 2019 6:34:21 GMT
You’re right. I hope people listen to you where you are. Perhaps your doctor might listen if it’s a small area and they see a few patients with the same problem...I can only hope. Stay strong for your family, raise awareness of this thing, it’s what we have to do. One tip, don’t try and link it to hiv when you explain it, because that’s when people start to dismiss it and say it’s just paranoia. That’s why this thing has flown under the radar, because people initially think they have HIV and get obsessed with testing, even after months and months of negative tests they persist - so doctors just assume it’s paranoia or some fear of HIV.
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Post by wheretolook on Mar 18, 2019 12:01:50 GMT
One interesting thing over the years I noticed is increased lipomas in body. Not just me all people I know who got infected, that's 100% and sure.[/quote] That is one of the many symptoms of Acquired Generalized Lipodystrophy (AGL), which is what this is. Those of you who are early on in this need to take this seriously. You'll feel decent after a year and be tempted to ignore it. Then it will come back hard in Year 5. And eventually (if it is AGL) it will turn into very bad diabetes, kidney and liver failure, and heart disease. We need to raise money to research this. I think a test for Complement proteins in the subcutaneous fat is a good idea. And a subcutaneous fat culture would potentially turn up the pathogen. I think it is caused by an intracellular pathogen inside adipocytes (subcutaneous fat cells) that is confusing the innate immune system into destroying the fat. Little research has been done into AGL because there have been something like 100 documented cases in history. With any luck it is an easy thing to crack with a bit of professional research - if a fungus or bacteria are identified as the cause we should be able to wipe this thing out. Although your symptoms will improve for a time, this does not go away on its own.[/quote] I totally agree. Honestly symptoms are going and coming they never disappear and I am loosing fat and accumulating a lot of lipomas even my kid 4 years old he have lipomas ! I know a women she got infected and she got a lipoma at her spinal cord and its hitting hard the only way she got relief is by fusion surgery.
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Post by Guest on Mar 19, 2019 5:46:21 GMT
AGL may well be a symptom, but it doesn’t mean that it is the disease itself. You don’t “catch” lipodystrophy. AGL is caused by other issues.
“AGL may occur following an infection or autoimmune disease. Infections that have preceded the onset of AGL include varicella, measles, pertussis, diphtheria, pneumonia, osteomyelitis, infectious mononucleosis, and parotitis. Autoimmune disorders that have been linked to AGL include autoimmune thyroiditis, autoimmune hepatitis, juvenile dermatomyositis, rheumatoid arthritis, Sjogren’s syndrome, Sicca syndrome, and autoimmune hemolytic anemia”
It makes sense. Every symptom of this thing relates to a widespread immune system problem. AGL, fatigue, weakness, hpv reactivation, tongue issues, gum recession, eye floaters, slow wound healing, weak joints, hair loss, skin problems, gastrointestinal problems.
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