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Post by Guest on Oct 4, 2018 4:40:46 GMT
So I am currently 1 year on this
Does anyone can help me ?? Give advice tips or something ?
Do you get any worsen of the symptoms?
My tongue is more swollen than the normal swollen of this and I think I have skin infection but not sure cause I have been using creams for that.
How was your first year with this can you remember ??
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Post by Keeponrolling on Oct 4, 2018 5:00:27 GMT
I know it is something totally different. That much is proven over the years with the old forum.
1st year for me was strange... lots of strange things: - stomach rumbling - throat pain - lots of mouth ulcers - ear pain (strange feeling) - pain in reproductive area - new moles - white spots on skin - facial pain - etc.
My gp was no help at all. So I decided to go to a dermatologist. She is ok but the best this was: After 1,5 years I picked up sporting again and things started to move up from there. Now I am doing 95% most of the time.
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Post by Tired on Oct 4, 2018 6:31:20 GMT
That’s awesome Keeponrolling. Glad you’re feeling good. Yeah, my GP basically tried to write it off as anxiety - as my blood tests were normal and everything negative. Can’t really blame him, what else can they really offer if all routine tests are negative...
Mine is only a month or two since symptoms started. Loose stool, fatigue, sore neck, armpit pain everyday (but lymph nodes aren’t swollen), white patchy tongue, weak muscles, wasting, sore eyes, cracking joints, erectile problems, change in urine, tinnitus, trouble sleeping. It’s not like any of my symptoms currently stop me from living a reasonable life (except maybe the fatigue), but it’s just carrying the daily dread of believing there is something seriously wrong with me that can’t be diagnosed and will get worse over time. And also picturing myself a few months ago - I could run around, have fun, exercise, not feel like shit, wondering will I ever be able to do that again?
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Post by kusum8 on Oct 10, 2018 12:10:39 GMT
My face is seen as thin comparision to previous face. I had a white patches in my head, just seen after cutting my hair. Worried too much.
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Post by ashyami86343 on Oct 11, 2018 14:09:38 GMT
My face is seen as thin comparision to previous face. I had a white patches in my head, just seen after cutting my hair. Worried too much. CHeck your Vitamin B12 level. it seems you are deficient. Candida / Yeast infection feed with Vitamin D, B12 & sweet... check this as well.
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Post by ashyami86343 on Oct 11, 2018 14:18:35 GMT
All, does anyone from USA, able to reach Dr. Nemecheck who is analysyt of HIV & owning research labs. please see link. www.nemechekconsultativemedicine.com/about-dr-n/"Dr. Nemechek realized that many of his routine patients were suffering from the early stages of disease and Autonomic Dysfunction (heartburn, headaches, fatigue), small intestine bacterial overgrowths – SIBO (intestinal distress, food intolerances), and their children were increasingly experiencing the symptoms arising from Autonomic Dysfunction and SIBO (anxiety, ADD, Autism, and digestive and intestinal issues)."
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Post by PZ on Oct 15, 2018 2:23:46 GMT
My face is seen as thin comparision to previous face. That's the main long term symptom. Your face wastes all the way down to the skull. You'll think your face is as skinny as it can possibly get and then it just keeps caving in. Then comes Type 1 diabetes. Luckily I'm not quite there yet. We need to keep looking for answers here. That doctor mentioned above looks like exactly the right person to talk to considering his experience in the past with an undiagnosable, untreatable disease. Let's get some more research going. Is Aperiomics totally done now?
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Post by Guest on Oct 15, 2018 21:34:12 GMT
What happens to kids ? Does anybody has had a baby
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Post by wheretolook on Oct 16, 2018 2:26:19 GMT
Hi all,
I do not see any progress on this disease, specially after shutting down the old forum that is really disappointing.
I am currently with a strong flare that triggers everything back to day1, and I was almost good since 2 years after I got infected with total 3 years.
I can tell something very clear, that this pathogen is very very intelligent and do not reside in blood, it goes everywhere and every individual will have different symptoms. The bad news that this pathogen will never ever go away, and if you resist it you will be worse and pathogen will be tougher and tougher.
What happen to Aperiomics I do not see anything, previous forum is shut down anybody have news ?
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Post by Tired on Oct 16, 2018 4:29:34 GMT
Hi wheretolook, sorry to hear that it’s flared up again.
Can you think of any reason that symptoms might have come back to you - ie stress, change in diet, physical exertion, etc? Or was it out of nowhere?
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Post by kusum8 on Oct 16, 2018 10:47:03 GMT
Hi all, I do not see any progress on this disease, specially after shutting down the old forum that is really disappointing. I am currently with a strong flare that triggers everything How long you have been infected by this pathogen?
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Post by wheretolook on Oct 16, 2018 21:29:51 GMT
Hi wheretolook, sorry to hear that it’s flared up again. Can you think of any reason that symptoms might have come back to you - ie stress, change in diet, physical exertion, etc? Or was it out of nowhere? I am not sure. But I am a lot under work pressure but I am not sure if it's the reason cuz I always having a lot of work. But one weird thing, is I tried to eat good diet and flare up started, so I have the opposite when I eat unhealthy I am kind of manageable, that sounds weird but that's how its with me.
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Post by wheretolook on Oct 16, 2018 21:30:55 GMT
Hi all, I do not see any progress on this disease, specially after shutting down the old forum that is really disappointing. I am currently with a strong flare that triggers everything How long you have been infected by this pathogen? Totally almost 3 years. After one year I got almost 75% recovered. now I am back to first months pain.
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Post by ashyami86343 on Oct 17, 2018 6:45:24 GMT
Hi all, I do not see any progress on this disease, specially after shutting down the old forum that is really disappointing. I am currently with a strong flare that triggers everything back to day1, and I was almost good since 2 years after I got infected with total 3 years. I can tell something very clear, that this pathogen is very very intelligent and do not reside in blood, it goes everywhere and every individual will have different symptoms. The bad news that this pathogen will never ever go away, and if you resist it you will be worse and pathogen will be tougher and tougher. What happen to Aperiomics I do not see anything, previous forum is shut down anybody have news ? Hi Wheretolook. what is the problem you are facing now. i am on 2.5yrs mark.
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Post by wheretolook on Oct 18, 2018 20:57:51 GMT
Hi all, I do not see any progress on this disease, specially after shutting down the old forum that is really disappointing. I am currently with a strong flare that triggers everything back to day1, and I was almost good since 2 years after I got infected with total 3 years. I can tell something very clear, that this pathogen is very very intelligent and do not reside in blood, it goes everywhere and every individual will have different symptoms. The bad news that this pathogen will never ever go away, and if you resist it you will be worse and pathogen will be tougher and tougher. What happen to Aperiomics I do not see anything, previous forum is shut down anybody have news ? Hi Wheretolook. what is the problem you are facing now. i am on 2.5yrs mark. Hi ashyami86343, I have neck pain (terrible neck spasm) with lymph nodes swollen around the neck and on groin area. Sores/Ulcers in mouth and strong episodes of nero headaches specially at the evening night times. Besides instability of stomach and abdomen pain like Hernia. The pain in the neck moves from one side to another playing with me hide and seek, I swear that exactly what happens. I also have pimples/rash and folliculites that is with me all the time never went away since 3 years were before I was having baby skin. I am almost disable at the moment, were 10 days back I was at the gym. I am afraid that this will go for another months. When I initially got infected, I faced the same symptoms like 90% of them, afterwards they begin to ease day after day but they lasted for 6-8 months. Believe me I started to forgot the disease until recently. How about you?
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